Atrial Septal Defect (ASD): How to Care for Your Child

Your child has a heart defect called an ASD (atrial septal defect). The heart has four chambers. The upper chambers are the right atrium and left atrium. They're divided by a wall of tissue called the atrial septum. An ASD is a hole in this wall that lets blood move from the left atrium into the right atrium, causing extra blood to go to the lungs. If the hole is large, the blood flowing through the hole makes an extra noise, known as a heart murmur. Health care providers can hear a heart murmur when listening to the heart with a stethoscope.

An ASD can be diagnosed at any age, but usually is found in babies or young kids.

Care Instructions

  • Keep all follow-up appointments recommended by the cardiologist.
  • Watch for signs that your child's heart is having trouble pumping the extra blood:

In infants:

  • fast breathing
  • fast pulse
  • trouble feeding
  • not gaining weight

In older children:

  • heavy or fast breathing
  • getting tired easily when playing or exercising

Call Your Health Care Provider if...

  • You think your child has any signs that the heart is having trouble pumping blood.

Go to the ER if...

You notice that:

  • The skin between your child's ribs is sucking in during breathing.
  • Your child has trouble feeding and seems dehydrated. Signs include dizziness, drowsiness, a dry or sticky mouth, sunken eyes, crying with few or no tears, or peeing less often (or having fewer wet diapers).

More to Know

How is an ASD diagnosed? To see if the heart murmur is caused by an ASD, a health care provider will do a test called an echocardiogram, or "echo." This painless ultrasound test takes pictures of the heart.

Sometimes children with an ASD may need a heart catheterization. During a catheterization, a thin, soft plastic tube (a catheter) is put into a blood vessel in the arm or leg, then threaded to the heart. The catheter takes measurements and pictures to help the cardiologist better understand what's going on in the heart. While the catheter is in the heart, the doctor may be able to patch the ASD by using a small device attached to the catheter.

What happens if the ASD can't be closed during the catheterization? If the ASD can't be closed during catheterization, surgery will be needed to close the hole. The health care team will decide when to do the surgery, depending on the size of the hole and how well your child's heart is working.