Hypopituitarism: How to Care for Your Child

Hypopituitarism is when the pituitary gland (a part of the brain) isn't working properly and doesn't make enough hormones (chemical messengers). Symptoms depend on which hormones are affected. They can include slowed growth, delayed puberty, problems controlling the amount of water in the body, and other problems. Treatments are available to treat most kinds of hypopituitarism (hi-po-peh-TOO-eh-teh-ri-zem).

Pituitary gland

Care Instructions

Follow your health care provider's recommendations for:

  • taking your child for any medical tests
  • seeing any specialists, such as an endocrinologist (hormone doctor)
  • giving your child any medicines
  • when to follow up to have your child checked again 
  • whether your child should wear a medical alert bracelet or device

Call Your Health Care Provider if...

Your child:

  • gets any new symptoms, such as vision changes, headache, joint pain, peeing more than usual or less than usual, or enlarged breasts
  • has trouble taking any prescribed medicine

Follow your health care provider's instructions for specific reasons to call. For example, for some types of hypopituitarism, kids need treatment if their body is under stress (such as from an illness or injury).

More to Know

What causes hypopituitarism? It can be congenital (meaning a child was born with it), or be due to an injury, an illness, or a growth (tumor). Sometimes it happens after someone is treated with radiation therapy for cancer or has brain surgery.

How is hypopituitarism treated? It is usually treated with hormone replacement medicine. Often, kids will need to take this medicine for a long time. This helps prevent serious health problems. If a tumor is causing the condition, surgery may help.